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Here We Go Egan

Living Life to the Fullest with a Chronically Ill Child

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Tag: cf clinic

Take It One Step at a Time
Posted on October 18, 2020October 18, 2020

Take It One Step at a Time

Life with Cystic Fibrosis means daily medication and treatments to prevent lung damage and other prescriptions to treat existing symptoms. Going into our daughter’s first clinic appointment, I was worried that I would be overwhelmed by all of the information and instructions for care that I received. Less than a week after our daughter was … Continue reading Take It One Step at a Time

Let the Preparation Begin
Posted on September 11, 2020

Let the Preparation Begin

Remember how I said I need to prepare for everything? Well, that was magnified with our daughter’s diagnosis. After receiving confirmation that she does indeed have Cystic fibrosis, I went on the hunt for all the information I could find. I wanted scientific information, I tried to find moms of children with CF, and I … Continue reading Let the Preparation Begin

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