Life with Cystic Fibrosis means daily medication and treatments to prevent lung damage and other prescriptions to treat existing symptoms. Going into our daughter’s first clinic appointment, I was worried that I would be overwhelmed by all of the information and instructions for care that I received. Less than a week after our daughter was … Continue reading Take It One Step at a Time
I promised to tell you more about our daughter’s experience in the NICU in my last post. I will do my best to relate the whole story to you, but my memory is terrible lately. Taking care of two under 3 takes a lot of brainpower! I remember when the doctor came in to tell … Continue reading Our NICU Journey (Part 1)
After our daughter was born, I was on high alert. Because she has Cystic Fibrosis, there was a high likelihood that she would have a bowel blockage. So, I was looking for any clue that she may have a meconium ileus. I struggled to breastfeed her the whole first night after she was born. I … Continue reading Trust Your Gut
Here We Go Egan 