Here We Go Egan

Living Life to the Fullest

Come along with our family as we navigate life with a chronically ill child and make the most of every moment we have.

Live

Get a glimpse of our chaotic, beautiful life. Join us for the beautiful moments that happen in our everyday lives.

Learn

Learn what is like to care for a child with Cystic Fibrosis. Learn how we balance living life and all of the medical treatments.

Love

Fill your days with love and laughter in the face of adversity. Feel the love of God in your life and see His hand in your trials.

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What Have We Been Up to?

  • Take It One Step at a Time
    Life with Cystic Fibrosis means daily medication and treatments to prevent lung damage and other prescriptions to treat existing symptoms. Going into our daughter’s first clinic appointment, I was worried that I would be overwhelmed by all of the information …
  • Our NICU Journey (Part 2)
    If you haven’t read my other post about our NICU experience, click here to read it first. We left off with my daughter’s admission to the NICU in a larger hospital downtown. After we left that day, they did another …
  • Our NICU Journey (Part 1)
    I promised to tell you more about our daughter’s experience in the NICU in my last post. I will do my best to relate the whole story to you, but my memory is terrible lately. Taking care of two under …
More Posts
I’ve felt forgotten by the world around me and God during this p*ndemic. Have you ever felt there was someone behind you? Dosing enzymes is hard at this age. CF has put a spotlight on my anxiety. Hey there! All these perfect squares make me feel like crap. It feels like fall in Texas! The most important thing is to show up. How do you cope with change? Kids can adjust so easily.

About Courtney

I am a wife, mother, over-thinker, and creator. I love making something out of nothing, and I am usually a mess. I am far from perfect, but that is how I like it. I struggle with perfectionism and depression, but I try to find joy in the little things each day like my husband’s smile, my son’s imagination, and my daughter’s laugh.